Saturday, November 28, 2015

Joolz has sleep apnoea...

It's been a while since I blogged - we've been a bit busy travelling to and from Adelaide - 3 trips in 3 weekends!
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Last weekend it was for the AC/DC concert for Gus and Brianna - which was so disappointing for Gus because of the sound quality. He hated it! Other than that, it was a nice weekend spent with our girls.  
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I bought a Nutri-bullet blender...which I have been giving a workout!...
...and a Yonanas frozen dessert maker (which I still haven't taken out of the box yet!). 
More on these later!
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Anyhoo, on the 16th Nov, I received my results for my Sleep Apnoea (SA) test which I did back on the 4th and they were not good!  Jen, who did my testing was quite alarmed and suggested I come the following day to be fitted for a machine.
Basically, I have 'very severe SA' where I stop breathing during my sleep. The stats showed I had 72 episodes (of not breathing) in 1 hour and one of those episodes was for 61.8 seconds - over a minute not breathing.  Hold your breath and try that!
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 So this bad boy is my new room mate - along with over a meter of tubing ...
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...and this highly fashionable piece of aparatus, known as a full face continuous positive airway pressure (CPAP) mask...
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Nice, eh?
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I have been struggling to find comfort wearing this blasted thing - it is not wearing the mask that bothers me, or the soft whooshing noise it makes as I breathe in and out -  its the fact that at some points during the night, it begins to leak air so it has to be adjusted - sit up in bed, turn on light - adjust looking in a hand mirror, oops forgot to have a drink of water for dry mouth before doing so, settle back down to bed, leaks again in half an hour, rinse, lather repeat!  I have not been sleeping well and most nights only tolerate the mask for 2-4 hours before turning it all off!  Then I sleep...but do I breathe??
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I know it will get better but gee, its hard!  The machine has an SD card inserted in it so each week I am taking the machine back to the chemist who does these tests and they upload my data to see how long I use the machine and how many episodes I have per hour.  The episodes are way down from that initial 72 to sometimes 9 an hour so the machine is doing its job - its just not letting me sleep a whole lot!
 Okay, stop whining Joolz, you're not dying!
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Are there any readers who have a CPAP machine - every one I talk to knows of someone who does. I'd welcome any tips and feedback.
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Cheers - Joolz xx
 

4 comments:

  1. Hi Joolz, I have S and the CPAP machine takes a bit of getting used to. Have you tried adjusting the straps? I find that when they are loose it makes it move and lets the mask leak. I have mine taut but not tight if you know what I mean. Though it is hard to find the right position for the straps. Good luck and it's worth it because you will feel better.

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    Replies
    1. Thanks, Jane. Yes, its just another adjustment in life! :)

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  2. Oh dear, Joolz. It must be so difficult getting used to those machines. I don't sleep well either but I don't think I could cope with wearing one of those. Good on you for trying and I hope it works for you.

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  3. My first comment disappeared while typing...don't know if I hit 'publish' accidentally or not. I wear a CPAP too. Carey got tired of waking me up to tell me to breathe. :) I've been bad about not wearing it lately...not sure why except that I've started sleeping on my stomach and don't seem to stop breathing when I do that. I really need to wear it regardless. I know a woman whose daughter died in her sleep...she had a CPAP but wasn't wearing it. Scary.

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